The Summary of What Went Wrong

Emily Beth Rusch created the group March 12 at 10:36am

9 likes

Emily Beth Rusch This is a group I created to share what is going on with our daughter, Addison River Rusch. She was born March 11th, 2014 at 37 weeks 3 days. On March 5th, I started to experience some itching all over my body. It was only slight but I mentioned it the following morning on fb to see if anyone else could relate. My wonderful friend, Serenity Anderson, suggested I might have Cholestasis. This diagnosis would explain my itching and dark colored urine. I made an appointment to see my doctor that day. They suspected I might have PUPPS (another itching problem) but I did not have any rash to fit that diagnosis. My blood work revealed high ALT levels but nothing extreme. I had to wait till Friday morning to complete the bile serum test so that I could be fasting. I did not get those results until Monday morning. Normal for that test is 0-19, I was 141. I called the nurse help line but they did not get back to me till about 11am that day. I went in for fetal monitoring at 1:30 and all was perfectly normal. After consulting with high risk maternal medicine, they diagnosed me with cholestasis officially and scheduled me to be induced between 6 and 7pm.

Emily Beth Rusch: I went in and they started me on cervidel to soften my cervix about 9pm I was hooked up to the fetal monitor and everything looked perfect. I took a shower around 8 am which required the removal of the fetal monitor. After I went potty, around 9:30 am, they went to replace the fetal monitor and could barely find a heart rate. The nurse hit the all nurses button, called the midwife (Diana), and put an oxygen mask on me. Suddenly there were about 10 women in my room. They leaned me back in the bed and attempted to place a monitor on Addison's head but I only had about a nickel size opening to her head. This was extremely painful and unsuccessful. They brought in an ultrasound machine and also could hardly find a heart beat. They started unplugging my bed and raced me down the hall, leaving Nathan alone. Once I was in the operating room, there were about 15 staff racing around. I was already crying and so scared at this point. They had me lift myself to another bed, and started washing my belly. Soon they put me under general anesthesia. From the time they noticed her heart rate being down, to me going under was about 10 minutes.

Emily Beth Rusch: This is an extremely rare and shocking case for the hospital, my doctors, and all involved. I'm extremely itchy, am getting a blood transfusion, but am otherwise improving well. Feel free to post questions if you want to know anything else.

Lisa Cornish: Kotter Emily, thank you for sharing such a personal and intense experience with us. I am so sorry you are going through this and am praying for a miracle for sweet Addison with all my heart. You mentioned on your Facebook page that you will know more about Addison's situation on Friday and that she has had a couple of slight improvements. Do you feel comfortable telling us more about the improvements and about what you expect to find out on Friday? ((Hugs))

Amber Croxall: We will keep your sweet family in our prayers.

Ginger Faulk: I agree with Lisa, thank you for sharing this with us. I've watched your pregnancy progress and now want to see the progress of your sweet baby girl. Are you able to see her and spend time with her? I realize she's in the NICU but hopefully you can spend time with her letting her know Mommy and Daddy love her and that you have family and friends who are praying mightily for her (and you).

Emily Beth Rusch: Improvement are that they adjusted her ossilator (I have no idea how to spell that) meaning she is getting better use of the oxygen she is getting. Her heart rate is also in the normal range as of sometime this morning. We are able to see her and place a hand on her but are not aloud to rub, pat, or move her otherwise. She can hear us but cannot respond to anything. She sorta looks like she's bouncing quickly because of the machines.

Ginger Faulk: You also said you would have a better idea of her prognosis on Friday...what happens then? Will they do testing of some sort?

Tabitha Weiler Armstrong: Every little improvement is so important and wonderful! I love Addison's little sign.  We decorated Ian's bassinet with a sign and lots of pictures that the kids colored for him. It definitely made things more "homey."

Jennifer Culp: Emily & Nathan, God bless you! Hold onto each other & the faith! Soooooo many prayers are being said for your sweet family! We all are just in love with baby Addison already and will continue to send heart felt prayers up in her behalf!

Victoria Romero Clearfield: We are all praying for your precious baby Addison!! My sweet 12 year old is praying for her so much! Let me know if I can bring you and Nathan anything! In God's name we pray! Amen!